Saturday, May 26, 2018

My New Location

I'm changing to a wordpress website. It's called "Pink Stinks." I'll be blogging there from now on.

It's still a work in progress, but here's the first post.

Pink Stinks.

Friday, May 25, 2018

My/Your Bad Cancer Ass


There are days when I grow impatient with the grief that cancer brings. Dwelling so heavily in Cancerland takes its toll, and robs us of the need to celebrate. I’m not talking of a superficial hoo-ha Yay to the Pink Sisterhood kind of celebration; I’m remembering to check in on the parts of this body, this life, that are still healthy. Because you know what? There are big parts of this body that can still kick ass. Major ass.  Colossal, massive, Trump Tower ass.

In this spirit, and in the spirit of so many bad ass women and men I know, let us channel some serious badassery. Yours and mine. Shall we?

Things my bad ass can do (and please add yours!):

1. Make bad ass pancakes. With cloudberry jam and whipped cream.
2. EAT said pancakes with my ass all bad in my cheap wannabe Amish-ass chair. 
3. Write a little.
4. Run. Seriously slowly, but whoop there it is. I can still run!
5. Read good-ass books. (As opposed to bad bad-ass books, which are basically just bad.)
6. Make a mean cup of really dark coffee, and savor it. 
7. Look out the window and name a few nice-ass birds, a few butterflies.
8. Complain. Especially about traffic.
9. Avoid cleaning by listening to music, petting the cute-assed cat, straightening a few loose papers.
10. Compose the most badass-mediocre poems, complete with a side of fries.
11. Throw out a few wildflower seeds and lo: a most ass-bad posterior patty melt of random flora. 
12. Forget important things, like my cell phone, or my purse. Spank me!
13. Interrupt my husband in the middle of a long-winded and oft-repeated story that I know the punchline to. It’s not my best moment, but if there’s one requisite for Big Bad Badassery, it’s truth. (Don’t tell it slant.) (Sorry honey.)
14. Seriously shop online, resulting in 1) one unopened badminton set and 2) a feline leash that, upon the first attempt to place it on our cat, resulted in her “disappearance” for several days and her now-severe PTSD around string. 
15. Ability to swallow four large chemotherapy pills in rapid succession!
16. Gargle – badassedly - with salt water. (Helps with the mouth sores.)
17. Lose hair, then look directly into the mirror. 
18. Say to myself:  I am bald. I am a badass. 
19. Sleep. Nap.
20. Imagine full recovery. Imagine seeing my kid graduate from high school.
21. Recite and dance to this video with Peter Dinkler. Space pants!

Because silliness is necessary, and because laughter heals: What, dear reader, are your badass superpowers? What gets you through these crazy days? 

Wednesday, May 23, 2018

Fear of the Unknown


I’ve started treatment. As mentioned in a previous post, I’ve developed a 5 cm growth in the area near my armpit, and it’s so unmeshed in muscle/sinew that it’s currently inoperable. The goal with this new treatment (also called second line, which means you’ve already been through chemo once) is to reduce the tumor in order to be able to cut it out.

The drugs? Xeloda and Taxotere. The Taxotere comes in the form of an infusion every three weeks, and the Xeloda is a 2 weeks on, 1 week off cycle of 8 pills a day. So far the 3-4 days after infusion are a wash of exhaustion and aimlessness*, but otherwise so far so good.

I keep returning to what the oncologist said: that there’s only a 30-40% chance of success with this. That even if all goes well, there’s a very high likelihood of recurrence, and then, then….who knows? Who knows? It’s like I call into a canyon and cancer has muted the world. There’s no reply. Just silence.

It’s in this space that I live my days now. In treatment for a recurrence, running the second lap around the infusion clinic, I’m not as optimistic, not as intrigued about the novelty of cancer treatment. The first time felt so much more new somehow, I felt like I’d joined a sisterhood and even baldness felt cool. Tough. Empowering, even. And I thought that if I beat it this time, then surely I’d be one of the lucky ones who made it past the 5-year mark. 

Not to be. It came back. The cancer came back. And this time, more so than the last, I’m tired and grief-stricken. The hair loss stinks, quite frankly, and this recurrence feels somehow more serious. My family is quietly afraid, and the pain this disease has inflicted on friends, family and coworkers fills me with such sadness. I hate it. I hate this disease. I hate cancer.

It’s these small, repeated losses that begin to add up. I picture a full, 1000 piece puzzle with color, depicting someplace beautiful. Paris, say. That’s my life. But now each new treatment, each surgery, each new diagnosis, each new big and small loss is a theft of its parts until, corner by corner, segment by segment, only a few disconnected pieces remain.



What goes with what? And who, what’s left?


(*except for an initial migraine reaction which sent me to the ER twice, and to the MRI machine)

Saturday, May 19, 2018

The Tyranny of Positivity



Over the course of this diagnosis I have often heard people say, “You have to stay positive. You have to stay strong.” Often these are people who have not had cancer. They mean well, and I very much empathize with the struggle to find language that offers hope, support, and kindness in what can feel, as a bystander, like a helpless or deeply uncomfortable situation.

And it is a struggle. So much of the language we use to describe cancer revolves around war: battle metaphors, fights, soldiers, destructions, killing, death. These words have not felt right to me, as I am no warrior. I could say incoming to the chemotherapy, but because it’s not bullets, I don’t. I don’t wear armor, I don’t patrol. And I will never carry a gun.

The language of a cancer “journey” has also felt inadequate: Where exactly, I wonder, am I going, and why can’t I go home? Where are my exit tickets, and what’s the return route?  There’s something that implies desire or adventure about the language of travel too, as if the ticket agent said, “Hey, we overbooked for Oahu, but here’s Cancer. Terminal 3.”

No go.

And so, in thinking about writing this blog post, I wanted to home in on why remaining positive, staying strong, or remaining hopeful on your cancer “journey” might all feel wrong. Or right. Or a mixture of all of these, or none.

Have you read that poem, “Wild Geese,” by Mary Oliver? She starts it with the line “You do not have to be good.” This one line has been such a touchstone for me, for what it tells me is this:  Authenticity matters more than obligation. Truth is what matters most. And I have taken this to heart. Reader, let this be your creed: You have no obligation to please. Your cancer is yours, your illness - whatever that might be -  lives only in you. Of course family and friends express care, but the home of all of this lives in your body, and therefore the ownership and truth of it begin and emanate from you. In that same spirit, I have resolved, in this process, to allow the full spectrum of grief, anger, surprise, gratitude, and yes – love and joy – to enter the circle. Not to wallow, not to ignore, but to give all of it its due. To live it, to breathe it in, and (this is important) when it’s time - to let go. But I will not hurry the grief, I will not rush the anger. I will not be told to go on quickly now, when time is all I have left.

The truth is that you do not have to be good. You do not have to be anything at all. You are not obligated to answer questions, to answer the “How are you?” that assumes a quick response, with the asker not realizing the ache the question triggers, and the fireball of emotions your belly carries in the fast few startled words you are able to utter.

You can say nothing at all. Or you can laugh. There’s a little crazy in it and this absurdity can heal.
All of it, all of it, is part of the arc of it, like wild geese, or the full turning of the day – “over and over” like cancer, like darkness and light “announcing its place in the family of things.”







Wednesday, May 16, 2018

The Cancer Monster.



As a breast cancer – patient? victim? survivor? – I am drawn to the philosophy of absurdism.

Why?

I am afraid. In the same way that I don’t know what to call myself (patient, victim, survivor), I don’t know how long I have to live. The sudden, cruel, cold reality of mortality is an abrupt door closed and open in front of me and I’m not sure what to do, what to think, what to feel.

So in that vein, let’s pretend this philosophy called Absurdism can speak. He says:

“Life is mysterious and unknown.”

He’d lean back in his chair at the cafĂ©, take a drag off his cigarette. Blow out smoke.

He’d continue: “There may or may not be meaning to life.”

He’d look out the window, tap ash. 

“Therefore don’t take it too seriously.”

I turn to the dishes, the pile of disability paperwork and tasks to manage. I look at my daughter’s pile of laundry, see the overripe fruit in the bowl. Traffic rushes by outside our front door, birds continue their spring singing. Old glue bottles, broken pencils -- the wilting Mother’s Day bouquet is still in its plastic. It’s a film panning to set a scene called The Ordinary, and I’m looking at the screen.

Don’t take it too seriously. I’ll soon be off work, most likely long-term. That’s one huge change. My body’s been razed, carved of parts. Another. My husband and daughter worry quietly, prop up our house with resolve, swallowing their own needs in the process. Friends and neighbors check in. More change. And my fear, my despair – it is laughable and a monster, it is north and south, it is surrounded by an orbit of maybe.

“Is there meaning in the universe?” 

Maybe.

“Is the pursuit of meaning worthwhile?”

Maybe.

“Should we fix the fridge, save for Paris?”

Maybe.

“Will I live to see my daughter graduate?”

And here the monster laughs, pats my knee. Rares back in the rocking chair. Turns to me and with razor teeth, smiles.

“Maybe.”




How do you cope? How do you reply to the ongoing"maybe?"

Saturday, May 12, 2018

Gratitude, Amen.


I want to say that there will never be birds enough, never be sunlight or words enough, to express the deep love and gratitude I have for the friends, colleagues, neighbors, family (and combinations thereof) who have offered their kindness and support in these past years. When I think of all of it, I want to fall on my knees like water to moonlight, and cave this body fully in to gratitude.

What this has meant is solace and comfort. It has meant knowing I can ask for help, though I resist doing so, though I pause.  So many of the women I know have children, busy lives of their own, work that must be tended to, whether at home or paid – it is a kind of sisterhood that I want  - nearing the angels – to herald, to praise. 

Hallelujah, say these earthbound sisters*, these earthbound birds. We are here.


House Finch Image Source


*(And wonderful brothers, too.)










Wednesday, May 9, 2018

Afraid.

Less than a month ago I was working, coming home, preparing dinners and chatting and running errands and being a mom, a wife, a friend. The business of those days was a dream of ongoing tasks that filled my days like background music. It was, to continue the metaphor, a refrain that the word "health" propelled, a momentum of its own buoyed by a returning trust in the world.

That's been shattered. There's no coda, only a wrenched needle ripped across a record, leaving those repeated clicks between ongoing, amplified silences. I'm sitting here and it's nearly midnight and my life, what it was, what it used to be --
click.....
click....
click.

I have cancer again. "Again." The implications of that word continue to frighten me. And the thread of optimism is still there, but it is fraying.



Sunday, May 6, 2018

Telling My Daughter About Cancer


Of all the cruel blows cancer offers, the worst one is having to tell your child.  

The thought of this glass wall of safety, of the belief in the world shattering yet again – it fills me with grief. 

I have felt that childhood has its own rights: safety, security, love, reasonable comforts, a belief in the ongoing goodwill and buoyancy of the world. I have, like mothers do, held these around my middle school daughter like blankets to prevent a chill, dropping one or two occasionally but quickly picking them back up again. And her father, too, a man I have grown to love even more, who is bewildered by what is happening but quick to rally:  he continues to nail back the boards of this falling house, continues to prop up the sagging fences.

The time had come to tell our daughter about this recurrence. 

For a month we talked about how to do this. For this time, this occurrence, we wanted to be much more intentional. We wanted to monitor how much information she received, and we wanted clarity and simplicity. We also wanted – and here is the hardest part – to impart hope, even when to summon it was an act that did not feel fully true. 

Here is what we did:

     1.  We waited. We let ourselves first, in private, process and react and talk. In the early morning hours, we wept together. We let ourselves grieve first.

      2. We met with our hospital’s oncology social worker, who walked us through the process of telling her and even role-played potentially difficult questions. She also gave us two resources to start with, which I will offer links to here. I’m in the SF Bay Area, but these are available in other areas, too:
  •   Camp Kesem – A FREE, wonderful camp for kids of all ages to meet, have fun with, and talk about their experiences of having a parent with cancer. We had heard about them and participated in their events before. If I could holler on every rooftop about this organization, I would, and if you ever need a charity to donate to, may this be the one. Our daughter has loved every single counselor she’s met in her experiences with Camp Kesem, and I thank God they exist.
  • Circle of Care – While I have only interacted via email and phone with the staff here, they have been incredibly supportive and resourceful. 

3. We planned the timing of it. Our daughter was on an outdoor field trip with her school, so we had about a week to plan. This was possibly the most important part. We wanted to make sure that it was on a Friday, so that she had the weekend to stay home, go out, talk, or have any and all feelings that came up.

4. Finally, we became clear about what we would say: That this was a recurrence, that I was in treatment for it, that we would take it one step at a time. That I was currently still healthy and able to do all the usual things, and that she had permission to ask absolutely anything. Also, that the doctors were doing everything they could to help.

5.  Equally important: we were clear about what we wouldn’t say. We would not talk about the odds of this treatment working (30-40%). We would not talk about “what ifs” unless she specifically asked, and even then frame it with caution and hope. I hope that does not come across as deceptive, we did not mean it so. There is some small lantern that parents must carry for their child, isn’t there?  It’s the one that give the strength to keep going on and gives your child’s legs muscle. It is hope, it is love – and though I am not often Biblical – it is faith.


And so, holding hands across this bridge, we told her.

...

And it was pretty anticlimactic. She briefly furrowed her brow. She paused, bit into her burger. She asked, “How big is it?” then asked where it was. When I lifted my shirt to show her, she gave the middle finger, placed it over the tumor and said, “Eff* you, cancer.”





Then: “Can I go on the computer now?”



I love her.**





(*She actually said “eff.” It was dinner, and she wanted to be respectful.)

(** I will also love her when her reactions challenge us. We know there will be more to come. )

(She also has no idea I'm writing this blog.)


Friday, April 27, 2018

Test Results: A Threshold and Possible/Likely Decline



The test results are in. The tumor is malignant, triple negative (again), and under my armpit, near the original site. It’s 5 cm, up against the rib and according to the oncologist, “trying to touch it,” and currently any operation to remove it would result in disfigurement. The goal now? Reduce the size so that it can be safely removed.

No mets to organs or bones, thank God.

But that’s small consolation right now. The bottom line is that it’s back. Not two years after finishing treatment, and it’s back. The grief and shock are not as great this time around, at least not visibly, but I am numb. Numb and deeply depressed and angry. My grief is not the sudden slam against a wall, but more like slow drowning.

Because this is a kind of threshold.

During the first round of treatment, the word “cure” was bandied about by doctors, nurses, myself and friends -- and it floated through my mind like a bright butterfly. Sometimes it would land, pause for a moment, and fly off, but it was often in view. Optimism was still a possibility, I could look to the sunset and plan for Hawaii. Phrases like “long-term survival” and “preventing recurrence” became touchstones for me, the marker on the racetrack that gave me strength for another lap. I started saving again for retirement. I planned a few trips.

But the cancer is back. And what that means is that treatment options shrink. It means that the cancer is wily, never quite went away, had dormant cells that managed to resist the Strongest Possible Regimen that Medical Science Had to Offer. It means a growing resistance to chemotherapies, and a higher likelihood of future recurrence. It means, in all likelihood, repeated comebacks of the cancer kid.

And my own weakening body as each future treatment unfolds.

I don’t know what to say. I wake each day and walk into my daughter’s room, see her breathing, see her eyes closed.  She doesn’t know yet that the cancer's come back. I want to preserve her innocence a little longer, protect her from the fear and grief to come. Angel of childhood, I pray, protect her from the dark bed of sadness. Give her a mother who is here to keep. But I know this is not heaven. 

It is earth, and there are only birds, and daylight, and the ongoing traffic.


Saturday, April 21, 2018

Things Not to Do When Waiting for Test Results



If you are waiting for test results, welcome. Welcome to the place where the ground is removed from beneath your feet, and the ship is listing left, then right, but never centered. It's the place I'm in now, waiting. Waiting to hear what I know already is not good news. It's just a matter of one side, which is not-so-bad, to the other, which is The Worst. Hard not to get seasick, hard not to crash. 

But I've learned a few things on this awful road. A few things not to do, now that I've been through it once already. This is by no means a definitive list, and take it with a grain of salt. I'm a big fan of the "Whatever works best for you" school of thinking, yet I hope some of these are helpful. They come from my own experience, and the fact that I've screwed up on every single one. Badly. 

So here it is, the not-so-definitive and only partially complete list. Please feel free to add your own! 

If you are waiting for test results, do not:

1 1. Google. I know, the temptation lurks but trust me: Google is not your friend. I don’t know what is wrong with their cancer search algorithm, but there seems to be some programmed result that always takes you to The Worst Possible Prognosis, or Death. They don’t tell you about clinical trials or new research, or long-term survivors. It will not give you hope. The lesson? You and your disease are not an internet search. It will only make you feel bad. Don’t do it.

    2. Tell everybody. I learned this the hard way. After my first diagnosis, I called and told everyone. Pretty much right away. I was in shock, terrified, flailing desperately for a nonexistent emotional lifeboat. My unregulated emotional state created havoc on my family and friends although, bless them, bless us all, we have all forgiven each other. This time, after the initial news from the recurrence, I was in shock and wanted to call and cry and scream and tell…..but I didn’t. And I’m glad I didn’t. As much as this diagnosis and the process impacts you, it impacts others, too. If you are on a work team, it impacts morale. It impacts your friends, your family. Also? If you’re still waiting for test results, the truth is that you don’t know enough yet. So:  Be judicious in who you tell, and why, and make sure they sit on your side of the bleachers. In the coming days, you’ll need them.

   3. Retreat too much. As an introvert, I understand the need to curl up and withdraw from this world. Dear God do I get that. And yet and yet ---- it helps to keep a foot out the door, one coffee date, one needed time to phone a friend. Also: people want to help, people want to feel needed. So, while you/we/I sit on the boat without a bottom called Waiting, it can help to keep connected. But  take this with a grain of salt, too. Weep and stay home if you need to. There’s no one way to grieve.

Bottom line is, if you have been given a recurrence diagnosis, I offer sincerest and heartfelt empathy. Because guess what? It’s baaaaaccckk… and that’s a whole new round of what-to-dos, isn’t it? Terror again, fear again, and the knowledge that the first round didn’t knock it out. I’m so sorry. I’m so very sorry.

You are not alone.

Wednesday, April 4, 2018

A New, Not Catholic Mass.

For three years now, it's happened near Easter.
The first year it was three days before. The initial diagnosis. The shock.
Year 2 was treatment recovery.
Now, year 3, more April news: a shadow. A mass near my rib. A Biblical vengeance, 5 cm worth. The size of an unborn baby's fist.

Something unnatural has arrived again in my body. Just when I was beginning to trust again in the world, turn back to my career, turn to saving and paying off some debt, turning to see my kid start high school --- this. Now this.

Everything has stopped. I am stopped. My thinking has stopped, my emotions, summer and vacation plans -- stopped. And I haven't told my family yet, haven't yet told my kid.

I am on hold until the biopsy. The biopsy will be difficult, it's in a difficult spot. Possibly inoperable. And until it's gone it's growing, growing, growing.

I am stopped but this thing -- I shall not yet name it -- is alive.




Monday, January 1, 2018

On This Somewhat Happy and Auspicious New Year.

It's a new year with cancer.

Just in writing that I feel anger, waves of sadness, some relief, the grey pallor of a new normal filtering the day. And if you're reading this perhaps you've either had it, or know someone who had it, and in either case it's a different kind of new year than BC, Before Cancer.

People talk about resolutions. In my case it's one word: "survive." I finished treatment last January but, given my diagnosis, there is "high risk" of recurrence, and every ache, every pang can lead to a spiral of OMG it's metastasized anxiety, complete with repeated advice nurse phone calls and bouts of depression. I'm learning to manage that, but it's a process.

When you have lost a breast or breasts, and you have finished treatment, what do you resolve to do? Here are some thoughts for this 2018 new year.

1. Begin to love the mute pucker that was my breast.
Is that too graphic? I am sorry. But there it is. It is scar tissue, folded like two lips covering missing dentures. It is a cavity, the wink from a death cult I must face every day. Because I do not like surgery and am at risk for lymphedema, and have also not cleared the 5-year window for Triple Negative survival, I am not getting reconstruction. I may not ever. So, I am learning to accept this gash, this cut, this scar, this line, closure, wound, sealed letter, removed IV, shut lid, mailbox, stubborn- toddler- not-speaking, inner life, hum-thrum lapsed Catholic revelation unasked-for tattoo forever embedded on my chest.

2. Try to trust the world again.
Oh, this one's tough. Cancer knocks that ship over and forever causes you to test the tilt of the floor below your feet. How long will I live? Should I get new clothes, save? Buy a trip? Plan for (a purchase, remodel, retirement, savings, next-year-whatever?) It is a cruel thief of optimism and hope. And so, slowly, slowly, I am going to begin to re-enter the field of possibilities, but --- and we know this, don't we? --- I will never look at the sun again. Mortality will always be the skeleton below my skin, knocking around every once in awhile or showing up with a ledger, just to check. And yet, going on is going on. And there are others: you, sisters and brothers (metaphorical and real), people re-entering and entering all the time. There is a pool of companionship that cancer can bring, a kind of camaraderie that even with the breath-holding fear, such as Emily Dickinson writes "zero at the bone," helps us move through. And so I will continue to walk forward, watch my step, and ask for help as I need it. And offer this hand to you, too, traveler.

3.Balance health with sanity.
The fear of food, chemicals, and certain lifestyle habits can strangle the enjoyment out of life. I have erred on the side of caution, but would like some more balance. There is some grieving for the loss of my old treats: wine/alcoholic beverages without worry,  sugar without care, buttercream frosting, Swedish fish, orange slices, IKEA cinnamon rolls, green tea lattes, Baskin Robbins ice cream, fried chicken, creme brulee, jelly beans, --- this list is a waterfall of goodbye indulgences. The thing is, I never ate much of these. I ran 5- and 10k races, drank green tea. But......well, goodbye. Mostly. I must reduce the already-reduced list. The good news? I can amp up good vegetable and fruit recipes, explore new cooking techniques, raid the farmer's market for the latest seasonal treasures. That, too, is sanity. I also remain committed to the idea that nothing, in moderation, is off limits. I must survive, but I must also live.

Dear reader, what are your ways to move forward? How will you return to your life? I wish you all, all, a year filled with new treasures, that may first be covered with dirt but that after digging yields sweet surprise. Love out.



Sunday, August 6, 2017

I Kissed Banana Pudding, and I Liked It.

I eat sugar. This has nothing to do with triple negative breast cancer, or maybe kind of, but I thought I'd put it out there that I do eat it, in moderation. That hoo-ha about "cancer feeding on sugar?"

Tobacco-in-a-spittoon pt-ting!

People with cancer are robbed of a whole world. We are robbed of safety, of comforts, of the ease of eating anything without worry. We are robbed of a sure future (and I know that's illusory, but health allows you to take tomorrow for granted) and we are robbed of time. With stage three triple negative breast cancer (TNBC), the risk for recurrence is higher than average.  Life's urgency increases and the recipe magazines - they call my name.

And so, one of the lifestyle changes I have made is to increase my intake of fruits and vegetables, as well as green tea. I have exercised my whole life. Reader, these do not make me special and cancer could come back anytime, even with these changes. I point these out to highlight that there's nothing unique about what I'm doing. Thousands of people make dietary and lifestyle changes every day; thousands of people get cancer, thousands go into remission. Ebb and flow. Ebb and flow.

Which brings me to banana pudding. I was salivating over old issues of Taste of Home magazine and found one with a recipe for banana pudding with - get this (eyebrows up and down, up and down) - Cool Whip, sweetened condensed milk, cream cheese, and SUGAR. Also, bananas. And vanilla extract. Gathering all my pastry mouth and lick-the-bowl anticipatory mojo, I baked and whipped up a glorious feast of cloudy sucrose, underscored with the yellow banana sweetness and capped with sweet cream. Dante Alighieri, you would not live here.

Bliss.

Thus, the point. Do not, in this short earthly measure, deprive yourself of pleasures. Hell has levels enough, and baldness makes no saints. Push off the tire swing and lift your feet; eat and savor and whirl at the bar, because you know, you know, after all the crazed spinning, you will always return to stillness, to the ground.


Cancer Didn't Make me a Better Person.

It didn't make me nicer.
It didn't make me suddenly brave.

And if you were to ask me if there were positive lessons, if the universe were sending me a message, I might:
a) Give the finger.
b) Laugh maniacally (cue plastic wind-up teeth).
c) Drive over a rodent quickly.

Which is to say that no, there are no messages. The positive lessons are mostly in your head.

Is this bad? Dear reader, the danger in this thinking is the implicit blame: if there is a message, then somehow you were "selected" to receive it. If there is a lesson, you must be The Student Who Hears. But these are fallacies: cancer is a random selector. It is secular, it is true science. Hear me: You are not special for having had it. This is not so terrible. For me, it was a relief.

And the last thing any patient wants is more health advice, more despair. Walk very gently before you pile any more "shoulds" on the cancer patient's list. She or he has had enough already.

Cancer didn't make me more spiritual. If anything, I'm a bit more petty, a bit more remembering. I look at swimsuit catalogues and envy two-breasted women. They are like birds to me now, elusive, robin red-breasted winged creatures, flitting from branch to branch in a world where it is always spring.

Cancer didn't make me kinder. But it did make me more real. Authentic. Mortality's door, one that before was in a room in my life's attic, is my front entrance now, and it is open and a strong wind is blowing. I walk through this door every day. It tells me not to hurry, but to hear.

And cancer never made me a warrior. It made me face choices and proceed. It made me ill, made the daylight dim, made me weep. These are not the stances of a soldier. They are the stances of suffering, and I do not wallow in them. But I will tell the truth.

What did cancer do for you? Did it change you?

Friday, August 4, 2017

Statement of Limitations

In which we resolve that: "Cancer is fucked."

If you want to talk about how unresolved anger causes cancer, fuck off.

I'm not going to mince words. Cancer. Is. Fucked. And I'm writing with a pseudonym which provides me some freedom to express the not-so-nice lady sentiments, in a forum that I hope helps some of my sisters and brothers with breast or other cancers to allow in the full range of emotions, from the pissed off table slam to the full on crie de coeur. 

My intent with this blog is to document not the "journey" but some small vignettes, pros and cons, and thoughts and impressions as I deal with this disease.  I'm not against alternative therapies.What I resist is the implied blame inherent in many of these: that if only you'd taken more cannabis, if only you'd been a kinder person, if only you'd done more of this and less of that, well....

You know. That is a road that will take you to despair. And that, dear reader, is not anything you need more of. Especially if you have, or if someone you love has been diagnosed with the dreaded rhymes-with-dancer crab.

As for the title of this blog, Chesty Puller is the most decorated marine in all of American history. He also said, "They are in front of us, behind us, and we are flanked on both sides by an enemy that outnumbers us 29:1. They can't get away from us now!" I normally resist military analogies, but this one speaks to me. 
Also, there is the obvious nod to the physical manifestation of the mastectomy. Chest, pull. The side of the chest that no longer has a breast is a line, two pulled segments of flesh stitched tight. Like a tight-lipped smile. 

Or grimace. 

Posts will vary in length and content, and will probably be occasional.

Your comments, feedback, experiences with cancer are most welcome.

My New Location

I'm changing to a wordpress website. It's called "Pink Stinks." I'll be blogging there from now on. It's still a...